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Diabetes Design Challenge: Some Innovative Runners Up

August 31st, 2010 by

According to Innovation.org, the Pharmaceutical Research and Manufacturers of America (PhRMA) has a new report out on diabetes, which states:
“A record 235 new medicines to treat diabetes, one of the fastest-growing diseases in America, are being developed by America’s pharmaceutical research and biotechnology companies.”
Wow. Do we really need that many new medicines? What about [...]

Source: AmyT

Guest Post: Walking the Type 1 Tightrope.

August 30th, 2010 by

Thanks to the move we have on tap for tomorrow and the fact that we’re up to our eyeballs in packing tape and cardboard boxes (and also that we’ve accidentally packed Siah into three boxes now … that cat had better be careful or she’ll end up in the moving van), now is a great time for a guest post from a fellow diabetes blogger.  This morning’s post comes from Jacquie of Typical Type 1, and I’m very honored to be sharing her writing talent here on SUM!

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JacquieI swear I wasn’t trying to get out of jury duty.

See, I was in the juror pool, answering questions about my job, my home ownership status and the last parking ticket I’d received, when the judge asked one question of all of us: "Is there anything we should know about that may impede your ability to serve as a juror in this trial?"

Sheepishly, I raised my hand. "I have Type 1 diabetes," I admitted. "It’s not a huge deal, but there may be a few minutes when I’m not able to pay complete attention. I may have to eat something in the middle of the trial."

For a second, no one said anything. Then the judge spoke up: "Hundreds of thousands of Americans have diabetes, and they’re able to perform everyday tasks like jury duty. If you need to eat, just let us know, and we’ll take a recess."

I nodded, and accepted my fate as a diabetic juror. (Also, I felt like kind of a dumb ass for even saying anything.) While I sat there and listened to the details of the trial and the life stories of my fellow jurors, the weird familiarity of the situation started to sink in. Of course I know that hundreds of thousands of Americans live with diabetes, Your Honor. Of course we’re all able to perform everyday tasks with relative ease. Of course I’m a normal person – except for the times when I’m not. Sometimes I have to excuse myself from a meeting or a bridal shower to shotgun a juice box. Sometimes I wear a mechanical pancreas in my cleavage. Sometimes I say things on the phone with insurance company customer service representatives that I would never say to a person in real life. But I’d be darned if some innocent citizen was going to go to jail because I’d miscalculated my breakfast bolus and spaced out on the defense’s arguments.

This was a perfect example of the proverbial tightrope we all walk as people with diabetes. Lean too far to one side, and you’re Sick. Fragile. Old before your time. Wilford Brimley’s biggest fan, with a collection of pill organizers and sad story to tell anyone who asks you how your day is going. Teeter too far to the other side, and your friends, family members and co-workers begin to believe that your diabetes is no big deal, after all. They’ll become convinced that your insulin pump does all the work for you, that diabetes is no more of an inconvenience than the task of flossing, that maybe if you just exercised more or laid off the Cinnamon Toast Crunch, your health problems would effectively disappear.

Before I started wearing my pump – and way before I started connecting with others in the diabetes online community – I treated my disease as an accessory. I wasn’t embarrassed about it, but I wasn’t exactly forthcoming, either. I gave myself injections in cars and at dinner tables the way other people apply lipstick. I kept up with everything, but I didn’t obsess over it. Every once in a while, a roommate would complain about my trail of test strips, or someone would shoot me a look while I tested in public, and I would retreat into a more secretive or jocular mode, shrugging off diabetes like it was a case of the sniffles or pesky rash.
Now that I’m in my thirties, I feel like it’s a tougher performance than ever. I don’t want anyone to assume that I need to eat lunch just because it’s noon, but I also want people to know that when I need to take a break from normal life to treat a low, I’m not screwing around. I really do feel like crap, and I really am in a potentially scary situation. Forty-five minutes later, however, I feel as average as they come. (Assuming I haven’t overtreated, of course, but that’s an entirely different kettle of Swedish Fish.)

I suppose the balance between "sick” and "normal" is just as difficult to achieve as a consistent blood sugar level that’s not too high or too low. The story of Type 1 diabetes – and how any person lives with a chronic illness – is a complicated and nuanced one, and it takes decades to tell.

Am I a healthy person who happens to have diabetes, or a diabetic person who happens to have a pretty healthy life? For this girl, the jury’s still out.

*   *   *

What’s your take on that last bit?  Are you a healthy person who has diabetes, or a diabetic person who has their health?  

Source: Six Until Me.

Educating the Weary: Diabetes Educators

August 30th, 2010 by

I personally wasn’t able to attend the annual meeting of the American Association of Diabetes Educators this summer.  But I’ve been there a few times. It’s quite the experience for a patient to witness thousands of experts in life-with-diabetes running around between lectures, demos, and expo booths. What are they all buzzing about? Today, a [...]

Source: AmyT

VIDEO: Talking About Diabetes and Pregnancy.

August 27th, 2010 by

The team at Johnson and Johnson visited my home when BSparl was about 2 1/2 months old, filming a short segment on pregnancy, pre-existing diabetes, and the impact of the diabetes community on emotional health management.  (Phew – sounds heavier than it actually is.)  I am proud that JnJ decided to make my story part of their video series, and I hope BSparl enjoyed having the camera turned towards her round little dome.

Source: Six Until Me.

On Keeping Secrets

August 27th, 2010 by

This recent testimonial in the Boston Globe, about a writer with type 1 diabetes who chose to keep his illness secret from girlfriend for quite some time, has stuck in my head. I can’t seem to stop thinking about the why’s and how’s of concealing your diabetes from people close to you. What a lot [...]

Source: AmyT

Know Thy Illness (Symbol?), Get Involved

August 26th, 2010 by

Speaking of World Diabetes Day, coming up November 14, I discovered this cool series of YouTube videos that the International Diabetes Federation has been pumping out to catch people’s attention. They’re short and evocative, all supporting the slogan “Understand Diabetes, Get Involved.”
For example, this bit on “how many people have diabetes worldwide?” Do you [...]

Source: AmyT

WEGO ChronicBabe Rebel-Rousing.

August 25th, 2010 by

(The subject line makes sense … sort of.)  This morning I have a few bits and pieces from the ol’ inbox to share, so it’s sort of like a Friday Six. Only it’s on a Wednesday.  And I only have three.

ONE! If it’s for Barton, I’m all over it.  Over the summer, I visited Clara Barton Camp and met Melissa "Rebel" Kauffman.  She’s awesome.  She’s also running the NYC Marathon to raise money for Barton, and she’s looking for support from anyone who has a little to give.  Here’s the deal, in her words:

"Five people with diabetes representing The Barton Center for Diabetes Education are running in the NYC Marathon this November as a fund raiser for Barton day camps.  I am a 3rd generation type 1 diabetic myself and run XC and Track for Oregon State University.  This past summer, I worked on the health care team for The Barton Center’s Camp Clara Barton and Camp Joslin. I believe that this charity event is a great way to show the over 2,00 children with diabetes who participate in The Barton Center programs every year that you can do anything if you have diabetes – even run a marathon!

My goal is to raise $3200.00 by November 7th the money raised will go to the Barton Day Camps that reach out to hundreds of kids in the northeast every year.  Please help by donating to:

Melissa "Rebel" Kauffman NYC Marathon
The Barton Center For Diabetes Education
30 Enis Rd.
Oxford Ma. 01537
or by calling 508-987-2056"

If you can lend a hand to this rebel-rouser, please do!  

Dos.Secondly on this truncated Six is some information from the team at WEGO Health.  Their Community Director passed on some information about a type 2-centric focus group that they’re putting together, so I wanted to spread the word to you guys.  Here WEGO with the info:

"Join WEGO Health’s new Online Panel for Diabetes Health Activists
In their ongoing work to empower Health Activists, WEGO Health is hosting an Online Panel of Diabetes Health Activists.  The panel will “meet” monthly (meetings are held virtually – on the phone and online) to share their feedback and experiences with Type 2 Diabetes communities online.  Panelists will get a $25 Amazon.com gift certificate for each meeting they’re able to attend, and WEGO Health will also make a $200 donation on behalf of each panelist to the diabetes non-profit of their choice.  Please note that this panel is being held on behalf of one of WEGO Health’s sponsors.
 
Interested in joining the Online Panel of Diabetes Health Activists?
  Get started by taking the Diabetes Community Insight Survey from WEGO Health: http://www.surveymonkey.com/s/FT5NM93
 
Questions about the Panel? Contact WEGO Health at: community@wegohealth.com"

Tres!And last but not least:  my conference wife Jenni Prokopy (editrix of ChronicBabe) needs our help getting her panel chosen for SXSW 2011.  She sent out some details on how to vote, if you’re looking to help, so here are the details from Jenni herself:

"Just a couple more days remain to vote for my SXSW interactive panel. Health Communities: Superheroes Who Need a Justice League will aim to help people build better sites that truly help each other – and this is the FIRST year sxsw has held a health track, so it’s extra important to be included. i can’t get there without your help! please take just one minute today to register and vote up my panel, and please spread the word." 

Click here to vote for Jenni’s panel!

So there you have it.  Some link love well worth the click.  Thanks for helping out any and all of these people who are making a difference!

Source: Six Until Me.

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